Today’s guest post from Hannah may be heartbreaking but the arrival of her beautiful rainbow baby Edie shows that love conquers all. I can’t even begin to imagine what they went through and their story is testament to the strength and love they have as a family.
We are a little family of three, my husband, daughter and I, but it wasn’t supposed to be this way. We were having twins! We had struck lucky: our family was going to be complete in one go. I wont lie, it took me a while to get to grips with the news. I worried constantly about how my body would cope and how we would manage as parents of two tiny people. However, six months later we were ready and waiting with bags packed, antenatal classes attended and two of everything purchased.
At 34 weeks our worst nightmares came true. Life was forever changed in October 2014 when our beautiful boy and girl twins were delivered stillborn by emergency cesarean section. It turns out that I had been ill with a rare condition called Acute Fatty Liver of Pregnancy that had gone unnoticed until it was too late. I’m lucky to still be here but our babies, Max and Emily, couldn’t cope and passed away before birth.
The following weeks and months were dark and looking back I don’t know how we survived them. I recovered from a c section and liver damage, attended my 10 day midwife check without my babies, went to the register office to register their stillbirth and planned and attended their funeral. We returned their double buggy and two car seats to the shop and shut the door on the carefully decorated nursery. I developed anxiety and couldn’t face going anywhere where there could be pregnant women or babies. We clung to each other and tried our best to shut the rest of the world out. In the three months following Max and Emily’s arrival, our newphew, niece and a close friend’s baby all arrived. It was the worst timing and I’d love to say that I handled it well but it was one step too cruel for me. I was angry and bitter and no longer recognised myself.
But that’s not why I’m writing our story. It’s because our family grew a year later in the shape of Edie, our beautiful and brilliant ‘rainbow baby’, who is now 14 months old.
We are now a family of three and are living a simple and content life together. Don’t get me wrong, we are still grieving for our twins and the lives they and we were supposed to have. Some days it is bloody hard. Seeing twins out and about still floors me. I have tried out and left two baby groups now because there were twins there and I just felt too sad. Seeing pregnant people sometimes still makes me want to run away and hide. I dread, even now, bumping into people who may not know what happened. As a family we will always do things to honour Max and Emily: lighting a candle, taking yellow roses to their garden of remembrance on special days and having a cake on their birthday. They will always be the missing piece in our lives. But my goodness they have taught us so much. I am certain that I am a better person and certainly a better mother because of them.
I appreciate the second chance I have been given and refuse to take it for granted. The online baby loss community are a group of totally amazing women who, for many, a rainbow baby has not been an option or blessing yet. The milestones, the days at home playing, the quiet cuddles at bedtime are all things I never got to do with Max and Emily so I will treasure them more with Edie. The negative things too: the mountain of tiny clothes to hang out to dry and the lounge full of toys and baby crap. Coming home without our babies to a tidy and silent house was a torture I can’t describe. I now try to revel in the noise and chaos that Edie brings to our house. I’m not saying I don’t moan. I have my bad days and I know parenting is hard but I guess what I’m saying is that I now have the perspective to know that it is a priviledge to be a family and many do not have that opportunity.
So we are a family of three. Forever changed by our extra two. Happy and grateful and a little bit sad all at the same time.
As soon as your baby turns one people seem to be desperate to know when you are planning on having another. I find these questions frustrating for many reasons. Pregnancy after loss was the hardest thing I will ever do. I spent months too scared to move, analysing every twinge or lack of twinges. We spent a very long time in that hospital clinic waiting room and even more time debating whether to go to the hospital waiting room for extra checks and reassurance. Only now, a year on, do we feel like we have regained our lives and are living happily. The thought of doing it all again and risking losing myself… I can’t quite bear it. I think people forget that I have been heavily pregnant twice and had two c sections. It all takes its toll. I’ll never say never but for now we are content and grateful to have Edie. She really did put me back together again.
Image via Coco & Wolf.
All of this is so true. Our first girl Alexandra was a neo natal death and we had Ophelia last year. My husband asked about another baby before left hospital! Jeeso! Much love to you all xxx
I’m so sorry about Alexandra. Ophelia won’t replace, but hopefully makes your life much brighter x
Thank you for sharing your story. It really resonated with me. Hugs to you all x
Thank you x
Thank you for sharing your story, I can’t imagine the pain you have been through and continue to go through but I’m so glad you have your rainbow baby to bring you happiness. Stories like this are a stark reminder to us mums to hug our children a little tighter and appreciate every day, even the tough ones. Wishing you lots of luck for the future x
Thank you for your kind comment. I think on a day like this especially, we need to hold those little ones that little bit tighter x
You’re so brave. I agree the questions about pregnancy after loss are very hard to handle. Pregnancy is not an easy ride. So pleased that you now have a bundle in Edie to love and bring you joy. x
I just don’t think people think about what they are saying. Lots of nods and smiles! Thank you x
Thank you for sharing Hannah, what a difficult story this must be for you to tell – brave lady. I’m so sorry about Max and Emily. Sadly my best friend’s little boy was stillborn at 38 weeks last summer so I have had an insight into just how horrible it is xxx
Thank you. I’m so sorry your friend has faced this too. x
Thank you for sharing your experience, and I hope your little rainbow keeps filling your lives with colour and joy.
I also want to say how amazing you are for holding it together in the face of well intentioned but ignorant comments by strangers. I too found it hard to put up with the continual enquiries after my ectopic and was often tempted to blast people with the truth. I cannot imagine the order of magnitude in your situation.
Love and healing to you xx
Sorry you have faced an ectopic, Lucy. Sometimes it is really tempting to let rip isn’t it?! Thank you for your lovely comment x
Hi Hannah
Thanks for sharing your story with us all. I wanted to say that I can completely empathise with well meaning questions from others. I had a miscarriage a year ago and the things people used to ask me literally blew me away at times – and I mean friends who clearly weren’t meaning to hurt my feelings. If nothing else, it’s made me try to be a lot more mindful. All the best to you and your family.
You’ve summed that up well, Lou. I am definitely more thoughtful with what I say to people now. I’m sure in the past I’ve been guilty of saying something insensitive too! x
Ha, me too!! x
Hannah, I was so moved by your story. RMF continually breaks my heart with the stories you very, very brave families share. I’m so glad Edie is bringing sunshine to your lives, and I’m sure given time she will grow up knowing Max and Emily are looking out for her. I know you’ve mentioned you had to leave some groups as seeing twins is too distressing, so I do hope you are able to find some support networks. Sending you heaps of love xxx
Thank you, Laura x
I’m not a mother, I hope to be one day. But it took several attempts to read this. Hannah you are an amazingly inspirational woman.
Han, you are incredible, and Edie is the luckiest girl there could be. My hero 🙂 You show so much strength every day. The little ones will always be in my heart. Loves you
Stephie xxxxxxxxxx
I am so grateful for such strength from wonderful Mothers (and fathers) of rainbow babies. I cannot even begin to imagine the feeling of such loss, I can though completely imagine the comfort that hearing and reading such stories will bring parents living with similar and forever sadness. Thank you for being so lovely to share x Edie will undoubtedly be the light in your dark days and I wish you lots of happiness x
Thank you for such a lovely comment, Amy x