There are times when we receive a personal story and my heart just breaks. But always, always, the couple involved are some of the strongest people around. They have to be to get through and I have nothing but love and respect for their bravery. Today Tamsin is sharing a very personal story that led to one of the hardest decisions you could make.
Have you ever had your heart broken? I thought I had. From the classic dumped-by-the-boy-of-my-dreams-in-sixth-form heartbreak; a more serious relationship breakdowns; to the terrible heartache when a beloved family member passed away. Turns out, I hadn’t really experienced true heartbreak until the 20th October 2015 when the Sonographer’s hand rested over mine and I looked into her eyes to see her apologetic, ominous expression.
It was the three month scan for our very first baby. Something I’d wanted and had been looking forward to for as long as I can remember. Before going in, I was nervous of course, I remember just wanting to see with my own eyes that there was something ‘real’ in there! The lights went off and after a short while on the screen was our little baby – a fizz of excitement rose up when I saw tiny arms waving, little legs kicking and a beautifully rhythmic heartbeat. I’d inwardly breathed a sigh of relief – it was a feeling of pure, pure joy.
But then, a slightly uncomfortable feeling crept in. The image in front of me looked perfectly normal – arms, legs, rounded tummy… but it didn’t look quite right. Not quite like all those other scan pictures I’d seen from friends or on social media when other’s shared their happy news. My concern was validated with the apologetic look on the sonographer’s face once she’d finished the scan.
I felt like I’d dropped right down from the sky – not a sinking feeling but a crashing, thud of a feeling. After further emergency scans the day after we learnt that our baby had a rare neural tube defect called Anencephaly. During the very early stages of pregnancy, it’s tiny little skull and a portion of it’s brain had not developed and we were told that the condition was ‘not compatible with life’. If we continued with the pregnancy our baby would not survive for more than 24 hours once born. I howled with grief the entire way home.
We were faced with the ‘decision’ to terminate the pregnancy. I say ‘decision’ although for us this was never a choice. I knew I could not bring a baby into the world that would never have the chance to ‘be’. But the actively putting an end to something I had so badly craved for such a long time was the hardest thing I have ever had to do and went against every instinct I had.
My experience of the termination was horrendous. From the anti-abortion activists outside the clinic to whom I wanted to shout “I don’t want to be doing this”, to being passed from one room to another, waiting in corridors and feeling very out of place. I remember waking up from anaesthetic and realising that my baby had gone. I began sobbing silently and was told robotically and without emotion by a nurse ‘you shouldn’t cry, your mascara is running’. I felt like no one in the world could possibly understand my heartache – all I could think of was how much we would have loved that baby.
This time and the weeks following are a blur. I felt wrapped in a fog, completely heartbroken. I spent hours lying awake blaming myself and going through every tiny thing I did/eat/said while pregnant. I was completely incapable of even attempting to console my husband whose grief was further adding to my own heartbreak. I continued to work (I run my own business and that time of year is our busiest) and had to put on a brave face for my staff who were not aware I was even pregnant in the first place, let alone what had happened. I would get home every afternoon and cry and cry.
Shortly after we tried again for another baby. I fell pregnant very quickly. I had naively thought ‘we’ve had our bad luck, this one will be fine!’ but after 6 ½ weeks, I had an early miscarriage. By this time I had numbed completely. Once again, I was convinced it was somehow my fault and my mind was consumed with all the ways I could have prevented this from happening. In hindsight, I now believe that my body was just not ready to carry another baby yet but at the time it felt like the cruel universe was just laughing at me.
The preceding months dragged. Being desperate for a baby is exhausting – the never-ending cycle of ovulation tests, pregnancy tests, fertility apps and late night googling takes its toll. I was on constant high alert for others’ pregnancy announcements and actively avoided putting myself in uncomfortable situations. I went to a dinner party and sat next to a pregnant lady who spent the entire evening complaining about how awful it was being pregnant and how she was so miserable that she couldn’t have a glass of wine. I screamed inside.
As a couple we slowly healed, and still are. We have the ashes of our first tiny baby and intend to scatter them when we plant a rose bush at the front of our home. I also got the tiniest little star tattoo on my wrist that sits under my watch. Only I really know it’s there and it’s just a reminder of the precious babies we lost and still think of, and it helped a small part of me to move forward.
After another six months we conceived again and I’m now four months pregnant. The pregnancy so far has had quite a few complications and hurdles that have just added to our nervousness and anxiety. I dread every appointment and scan and think the worst every time I feel a pain or something strange, but as the weeks go by, I am slowly beginning to let myself believe that this baby is going to be fine and to allow myself to feel excited and to begin thinking towards the future. It’s something I’m working on day by day.
I’d like to think our experiences have made me, and us as a couple, stronger, although it doesn’t feel like it quite yet. I pondered long and hard about whether to write this, but I remembered reading Becky’s post on Rock My Family about her ‘Missed Miscarriage’ and how it made me feel like I wasn’t the only one going through hell, which is hard to do when you’re in pain. It made me think that if I could just help one person feel less alone in grief or encourage someone to talk about their issues then it would be a good thing. I can’t thank Becky enough for her kindness and support when I contacted her and I will always be grateful for that.
My experiences initially gave me a sense of failure, guilt and shame and only when I opened up to my family and friends did I begin to heal and realise that none of these things were my fault. I strongly believe that we should all feel more comfortable and create a more open culture to talk about pregnancy issues, loss and fertility and for it to be less of a forbidden and taboo subject than it currently is.
Heart-breaking story and my heart goes out to Tamsin. I totally agree these things should be discussed more and not be hidden away as taboo. But can I ask you for a minute to imagine the added burden Tamsin would have gone through if she’d had no option to terminate her first pregnancy in her own country… A woman in Tamsin’s position in Ireland would be forced to endure the full pregnancy, or travel away from her family, friends, support system, over to the UK for a termination. And then to creep home like she’s done something wrong, hiding her babies ashes in the boot of the car… Or trusting them to a courier company. That’s the added horror that Irish women have to endure in this situation and it’s horrendous.
Thank you for raising that important point. It’s especially relevant given the women on strike in Poland fighting for their reproductive rights and the rhetoric floating around in the US election.
Did you follow the Twitter account charting one woman’s sad journey to the UK for a termination? Worth a read.
Yes @twowomentravel were so brave to share their journey. 10 women per day I think it is who travel…
Thank you for sharing. What a wonderfully strong woman you are. Itvresonated with me as Anencephaly is a word I heard a lot growing up. 15 months after I was born, my sister was still born. She had Anencephaly. My mum says she always felt something was wrong with the pregnant but because she had one healthy child (me) she was refused a scan! My brother was born a couple of years after that and although it’s very hard to talk about, we haven’t forgotten that little baby. Having had a baby myself now, I can only imagine what my mum went through. Lots of love and good luck with your new arrival.x
Tamsin, thank you so much. My heart goes out to you and your husband, such an upsetting piece to read but so brave of you to share your experience.
Wishing you both and the little one you’re carrying much love, health and happiness xx
This is heartbreaking – I cried my eyes out reading this. You are so brave Tamsin, and I really hope everything goes perfectly for you for the rest of your pregnancy and birth. I am currently 5 weeks pregnant and the worries and fears are already creeping in that something will go wrong, or that I’ll turn up to my first scan and they’ll tell me I got it all wrong and there’s no baby there, so I cannot begin to imagine how you must have felt. I guess all anyone can do is hope and pray for the best xxx
Just love to you Tamsin. Love and a million good wishes and thank you for sharing your story. Xxxx
Tamsin, firstly thank you for sharing this and adding to the voices of the women who refuse to be silenced by the twisted, false ‘shame’ of complications in pregnancy. You’re doing women everywhere (and countless reading this post) an enormous service.
My Mum lost my little sister in very similar circumstances to you. She was around 20 weeks though and had to be induced. I cannot even begin imagine the horror of what she went through. My sister’s name is Fiona and to this day, my Mum, my living sister Sarah and I all wear the same silver ring. It has little footprints on it and it links all the women in my family together, including the one we lost.
Your babies will forever be a part of your life and I love the idea of you honouring them with that rose bush.
Sending you so much love and luck for your pregnancy.
Love you so much tamsin. You are utterly amazing to me! Reading this has made me cry and burst with pride at how strong you are all at the same time. Can’t wait to meet baby R in a few months time. Love you bestie. Xxxxxxx
You’re already a great mother – I hope you have a healthy rest of pregnancy and believe you’ve been through the bad times now its time to enjoy it! All the best x
Tamsin I can’t even begin to imagine the pain you must have gone through. I’m sending you so much love and luck for the little one growing inside of you and I hope you are able to heal as a family xxx
Such an unfair and heart breaking story. I know someone’s who’s first baby had the same condition however it wasn’t picked up at the 12 week scan but at the 20 week scan. She now has 2 very different and cheeky girls. You’ll find your own way to carry your grief (you don’t get through it/over it) you get a normal. I wish I was brave enough to get a star tattoo to remember our Alexandra!
Tamsin, I am so sorry for your loss and thanks for sharing. Loving your baby and having to make such a horrendous decision are two things which feel absolutely incomprehensible to the brain and the heart, just truly heartbreaking. I have been through TFMR twice, due to ‘bad luck’ and can say that aside from my living son, what keeps me going is the thought that the only ones to experience suffering and pain in the situation were my husband and I. Not our babies. Our decision was further complicated by the fact that our babies condition was not confirmed as fatal (it was a very serious chromosomal disorder). I am now 15 weeks pregnant with what appears to be a healthy baby, but with massive anxiety and fear. Only immediate family and my best friend know about what we have been through, others only know we experienced loss, mainly because I struggle to talk about what has happened and I fear judgement. Its an incredibly lonely experience to grieve for what might have been, in private. Sadly, there are many women who have been (and will go through this) and I would plead with readers not to offer any judgement of others decision making, only offer support. You never truly know how you would deal with a situation unless you are in it. There is a lot in the media this week about prenatal testing and TFMR and I find it distressing that anyone feels they have the right to criticise such personal and heartbreaking decisions. Decisions made following research, with love and care and heartache and that will never be forgotten.
I was supported by a charity called ARC (Antenatal Results and Choices) and if you have not reached out to them, you may want to. Their helpline has been incredibly supportive to me and they also have a private forum full of lovely ladies who have a had similar experiences.
Wishing you an uneventful remainder of your pregnancy and a happy future with your little rainbow.
x
Oh Tamsin thank you for sharing this – I’m sure it will really help lots of people to feel less alone with their grief. Life can be very cruel sometimes, I’m really sorry you’ve been through such a difficult time. It’s impossible to put anything down in words really, but just sending lots of big hugs and positive vibes for this pregnancy x
Thank you for sharing your story Tamsin. Loosing a baby at any stage is just awful but having to make that decision must be even worse even if there really isn’t much choice at all. Sending love and only the bestest wishes x
You are the most beautiful, amazing lady Tamsin and I am so honoured to be your friend. In your true way, you are sharing your heartbreak to help others. I fully agree and you know through my experience, that miscarriage, still birth or not even being able to get pregnant…. the heart ache is emeasurable but we must talk about it xx
Sat here with tears in my eyes reading this beautifully written, yet incredibly sad experience. I’m so sorry to hear of your loss and pain Tamsin – how brave of you to discuss this, really admirable! I think even those of us who haven’t had to go through half as much on our path to motherhood appreciate hearing stories such as yours, as there really is nothing more humbling to make us realise what really matters in life. There is a lot to be said for health, happiness and family.
As somebody who knows a few people struggling with conception, I have always tried my best to keep pregnancy news low key and not to moan when pregnancy/new mum issues get me down, because I know how fortunate I’ve been and would never want to be insensitive to those who endure a road of heartbreak, like yourself. I can only imagine how infuriating it must have been for you to listen to somebody’s pregnancy woes after what you encountered. I think your story is a definite reminder to count all blessings, something so many of us in a world of social media and oversharing forget to do.
I really do wish you all the best with your pregnancy and hope that as the weeks pass you can have the chance to enjoy what is a magical time. Big hugs! Xxx
Oh my Tamsin what a journey. You are such a loving, caring person and it is a joy to know and work with you. I am in awe of you!
Thank you do much for sharing your story, Tamsin. You suffered such heartbreak but by sharing I really think it helps everyone in their grief. Wishing you all the best with your pregnancy x
Thank you for sharing your story Tasmin. Parts of it really resonated with me after experiencing early pregnancy losses myself. I love the idea of your tattoo. I hope the rest of your pregnancy is smooth and stress free.
Tamsin, thank you so much for sharing your story. I am sat on my sofa crying as I cuddle my beautiful 7 week old baby. I had two miscarriages prior to Thomas. You’re so right that it is important to discuss our pain and loss. At times I found the silence surrounding miscarriage suffocating. I wish you all the best for this pregnancy- I know it’s hard to enjoy pregnancy post loss. Thanks again for breaking the silence xxx
You are truly brave – telling your story will help so many people feel it is OK to discuss pain and loss. Inspiring and awesome – what a woman!
I’d really like to say thank you for all your amazing comments and also to the people who have reached out to me privately. It was very scary to write this post but I’m so glad I did. I’m so sorry to hear other people’s terrible experiences and hope that by talking about these things more openly we can all heal that little bit more. Hugest love to you all xxxx
You brave brave, wonderful woman, Tamsin. My heart goes out to you and I applaud you for writing this. Thank you for putting it “out there” in all it’s honesty. It is incredible what some women have to live through in their wish to become a mother. And you are so right, I always got so angry at obviously healthy pregnant women who kept complaining about nonsense. My son has taught me gratefulness. We should all be more grateful for the miracles we get. I wish zoo all the best for this pregnancy and a wonderful life of being a Mum!
My heart goes out to you and any other woman who has lost a child or had difficulty getting pregnant. I was researching tattoos for my two babies that I lost years ago when I can across your article. It hit me so hard because it felt like your thoughts were my thoughts. My husband and I tried for several years to get pregnant and when I finally did I was both scared and excited. Sadly, I miscarried at 10 weeks. I was devastated because all I ever wanted was a child. I had surgery about a year later for a blocked fallopian tube and got pregnant about 2 months after the surgery. Again, I was so scared that I would miscarry again. We had an ultrasound at six weeks and once I heard the heartbeat I relaxed a little but a small part of me was very nervous. I went for my routine ultrasound at 18 weeks and that is when my world crashed. The ultrasound showed my baby had anencephaly. Everything was a whirlwind after that diagnosis. We met with the doctor that afternoon and given our options of carry the baby to term knowing he or she would die shortly after birth, delivering the baby now or terminating the pregnancy. In 1992, there was no doctor in my state that would do a second trimester abortion so we had to go to a clinic. It was horrific. They are very cold hearted. They would not let my friend who was a nurse go back in the room with me. You are not given any pain medication and I screamed horribly and the doctor told me I couldn’t scream. My baby is literally being ripped out of me and I am not allowed to scream. Thankfully, there was a volunteer who took my husband to another room for privacy. When it was all down the nurse had the nerve to ask me what birth control I was going to use. I wanted to scream that I wanted my baby and I wasn’t there because of an accident. I honestly don’t know how I got through it without losing my mind. My husband was there for me and we grieved together. I never even got to find out if the baby was a boy or girl. I regret to this day not opting to deliver my baby and holding him or her until they took their breath. That was a very dark time of my life. I became pregnant again 6 months later and was so scared every moment of everyday. I relaxed a little once we had an ultrasound a found out our son was okay. I still did not relax until I held him in my arms. He is now 23 years old and I also have a daughter 19 years old. Shortly after my daughter was born I was diagnosed with chronic depression and have been on medications for 19 years. I will never come off because I have tried and sunk into deep depression. I am okay taking the medication because it helps me feel better. Many of us have gone through very traumatic experiences of losing a child. In the early 1990’s there no internet to chat with other people who have gone through the same experiences. I have been a nurse for twenty five years and worked in an Ob-Gyn office for several years. I have spoken to many women who refused to take an anti-depressant for post partum depression because they feel it is a sign of weakness. We all need help at some point and even if it for a short period. It only takes a split second to lose control and hurt your baby. There is so much information and many sites where you can talk to someone. I wish I had this help and the guidance of other mothers during my difficult time. There were many times I though of suicide but my children and husband kept me here on earth. I want to get a tattoo to remember the baby I miscarried and the baby I lost to anecdotally. It was over twenty four years ago and I don’t know if it’s too late. Any advice would be gratefully appreciated. Tasmin, I am praying for you and your baby. I hope that you have a healthy baby and all your dreams come true. Stay strong and always remember there is someone out there who cares and willing to listen. God bless!!