Hi there everyone, I’ve been loving reading all of your advice and thoughts recently, what a wonderful community we are building here. Today I’m going to introduce you to Katie – a long-standing member of aforementioned Rock My community, she was a real bride way back in 2011 on sister site Rock My Wedding.
Katie is sharing her rollercoaster pregnancy journey with us all today so please do give her a warm welcome in the comments section.
Let me start with a disclaimer ~ I now have a beautiful, healthy, thriving nine month old who is meeting his milestones, so I don’t mean to alarm anyone… this story does come with a positive ending!
Nothing can prepare you for being pregnant. Sure, friends had been pregnant before me, and for the most part they made it seem easy. But no one ever seems to talk about the slightly tricky bits, or the bloody tough and painstakingly worrying bits. Someone even told me labour was, in their words, “lovely”. ARE YOU KIDDING ME?! COME ON!!!
My pregnancy was pretty straightforward until the 20 week point. Yes, there had been the overwhelming tiredness, the morning {noon and night!} sickness and the desire to only eat beige food, but other than that, nothing out of the ordinary.
My husband and I went off to our 20 week scan feeling nervous, but rather excited to see our baby again. I held my breath during the scan, hoping that everything was fine. I held it again when the sonographer uttered the words, “I’m sorry there seems to be a problem with the brain”. And with those eleven words, she left the room.
Time came to a standstill. A 45 minute standstill to be exact. It felt like 45 hours. I hated the sonographer for leaving us for that long. How could she?! We were both blindsided. Messages came in from family and friends asking how everything was, did we find out the sex…
We couldn’t reply. So we didn’t. What would we say? For once, neither of us had any words.
After several hours of being passed from Dr to Dr, someone finally decided on a diagnosis… after a little internet research, yes seriously! They called it borderline ventriculogmegaly, which essentially meant that one of the brain ventricles was measuring a little bit larger than it should have. I’ve simplified it, but they made it sound terrifying. Google made it sound more terrifying. Hell, what I don’t know about this condition now, I could write on a postcard!
Thankfully we were referred to another hospital where I was placed under the care of one of the best consultants in the country. Someone who knew what the condition was without the need to refer to Wikipedia!
I was booked in for a MRI scan of our baby’s brain, monthly scans until my due date, and my consultant {my hero} tried to calm my tears with reassuring words.
He said it would likely resolve itself in utero, he said it was a often seen with bigger babies, he said feto-maternal medicine was not an exact science {!} and not to worry.
Of course I did, and to call it worrying would be a massive understatement. I was a wreck. It affected my pregnancy and my emotional wellbeing.
I found the MRI scan terrifying ~ but it was incredible to see the detail from the images, and took so much comfort that the rest of our baby’s brain was developing just fine. With each scan the worry faded away, only to build back up a week or so later until our next ultrasound.
To add fuel to the fire, my amniotic fluid levels went sky high in the last six weeks of pregnancy which became another cause for concern ~ but again my consultant offered more reassuring words as much as he could.
I genuinely did not know how healthy our baby was going to be. Despite everyone’s reassurances, Google told me not to be hopeful.
But on my birthday, when my waters broke in quite dramatic fashion {yep, that would be the excess fluid!} and after a 23 hour labour, our healthy, beautiful, perfect baby boy was born. My incredible consultant had been right on all accounts.
I know I am one of the oh-so very lucky ones, I really do. Emotionally it was tough journey for me, and from time to time I struggle with it all now, but every single time I look at my little boy I feel beyond grateful.
Usually you only hear the two ends of the scale ~ the straightforward and fantastic, and the deeply upsetting and saddening. Our experience, really, was neither ~ so perhaps that’s why it completely knocked for six as it was so unexpected.
If I could offer some advice to anyone who’s pregnant, it would be to seek the best care possible. If you’re not happy with your hospital/midwife/consultant, ask to change. It’s your right to do so. I switched hospitals after my initial referral, which did mean that I delivered our baby at a hospital almost an hour away… but it was the best decision I could have made, and dare I say it, restored my faith in the NHS and reminded me why we are so lucky to have it.
Another thing: talk. Not necessarily to everyone, but to those you trust. My husband was my absolute rock and he really came into his own during this time {who knew he had it in him ?}, my mum was incredible and an amazing friend who had just had a baby at the time, and who certainly didn’t need any more added stress, was a god send.
My last piece of advice, and probably the hardest piece to take is to step away from the internet and from all kinds of forums. My continual googling did me absolutely no favours ~ it quite frankly made my emotional state worse… although combined with my love of Grey’s Anatomy, it did result in a consultant asking me if I had a medical background!
Image by Little Beanies
Thank you so much for sharing, I have my twenty week scan in under a week and this has given me some reassurance, I have been so worried about what I would do/how I would react if there is less than positive news, so it’s so helpful to hear about your experience and how you handled it. I know not all similar stories have a happy ending but it’s lovely to hear ones that do! xx
Good luck for your 20 week scan India, I really hope t all goes well for you ?
I don’t think anything can prepare you for how you’ll handle any difficult situation can it? I’m just grateful for the people close to me who helped me get through this one, I couldn’t have done it without them x
So happy everything has worked out ok for you. Pregnancy and labour is worrying enough, I can’t even imagine how scary that must have been for you.
I definitely second the hospital choice too, we have chosen a hospital 45 minutes away (rather than 15 minutes) as the care there is so much better. People think we are crazy, but I know it’s right for me and baby.
Thanks Evie ?
People thought we were crazy with our hospital decision too {most didn’t know the background though}, but it was without a shadow of a doubt the best decision we could have made… even when we were sent home when I was in labour only to do the trip again less than two hours later! X
So glad to hear everything worked out and your little boy is healthy and happy. Thank you for sharing. X
Thank you Sophie ☺️ X
Ahh Katie, I remember you as a real bride, you were in the year that I got engaged and started reading RMW! So pleased to hear the happy ending to your story, I don’t think until you enter the world of trying to conceive/pregnancy/children you can comprehend how bloody scary it can be xxx
Ah so lovely that you remember me! Those days feel like such a long time ago now!
You are SO right about the scariness, nothing can prepare you! X
What an amazing lady and Mummy! Your little Oscar is so precious and just testament to how much he is loved. Anxiety through pregnancy is so tough as all your emotions are already heightened and then to throw such worries as this into the mix it would be hard for anyone to cope! I’m so proud of how you came through it and tackled every obstacle thrown at you, other than your lovely boy the positive is that you now know how strong you are! Xx
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So glad to hear everything worked out OK for you Katie and hope you’re enjoying being a new mum! Probably being a worrier but I was terrified pre 20 scan as its such a big milestone in development yet still perceived as a sexing scan. Thanks again for sharing xx
I’m also a massive worrier too, and you’re right about it often being perceived as a sexing scan, and it makes me so cross to hear people talking about it like that’s all it is when it is so much more significant!
I absolutely love being a mummy but I don’t think the worry will ever stop now I’m a parent ? X
I’m so glad to hear you had a healthy baby. It’s important to hear stories like this. At my 12 week scan we were told there was a 5% chance our baby had a heart defect. They wouldn’t know until the anomaly scan as it could be something he’d outgrow. It could have meant a hole in the heart or various other situations, potentially meaning heart surgery at birth or when young. Our anomaly scan was at 22 weeks and god those 10 weeks dragged. We saw a specialist sonographer and I don’t think I breathed the entire scan, but he was fine. Then we had to have the regular anomaly scan – which again was healthy. I actually didn’t google or research at all. I tried to focus on the 95% chance he was ok, but of course your mind flickers to that small chance they’re not. Pregnancy is a very worrying time and I’m so greateful for the NHS!
I agree that it’s important to hear these stories ~ I debated for such a long time whether to write anything but came to the decision that by telling my story, if it offers comfort for just one person then that is good enough for me… and I know I certainly looked for this type of reassurance while pregnant.
I’m so pleased to hear your outcome was a positive one ~ and I agree, pregnancy certainly is a worrying time! x
This exact same thing happened to us! The worst moment of my life to date when I asked the sonographer if something was wrong, as he kept measuring the same thing over and over again. We were referred to Jessops in sheffield who were wonderful and had an ultrasound with a Professor and an MRI. It appeared to have already shrunk back to normal measurements by the MRI so we were just scanned again at 28 weeks.
I too, have a healthy baby boy who is 8 weeks old and would like to reassure anyone going through the same thing. Modern medicine is great but apparently this measurement wasn’t even taken a few years ago and I did wonder a few times on the darker days if ignorance is bliss.
Thanks for sharing x
I’ve just read your post again – the midwife also told us that the consultant had googled it before coming in to see us! How crazy that this happened to you too!
Hi Carly, such a small coincidence… we were also referred to Jessops in Sheffield ~ our consultant was Mr Johki who was truly, truly wonderful. I wonder if you were referred from the same hospital as me…!
Many congratulations on your baby boy, I’m so pleased to hear everything worked out for you and I hope you’re enjoying being a mummy ? my mum often said that about ignorance being bliss when she was pregnant with me as they just didn’t check in the same ways that they do now! X
How strange! Ours was Prof Farrell, he was lovely too.
We were referred from Bassetlaw. Although, I must add that the run in with this doctor was the only time that we were ever unhappy with the treatment there. We went quite a lot as I had blood pressure issues and reduced movement and they were amazing. X
Thanks for sharing your story! I’m so glad that your little boy is well! I cannot believe the massive fail of leaving you for that long after telling you that something is wrong with your babies brain! Awful!